# Grant Writer

> Digital · New York, United States (Remote) · Part-time · Posted 2026-10-01

**Workplace:** remote

**Department:** Hire Digital

## Description

We are looking for an experienced **Grant Writer (Freelance, Remote)** to support a nonprofit organization dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease. The organization raises funds to advance scientific research and treatments, support affected individuals and families, and strengthen the global Barth syndrome community.

The ideal candidate has a **strong track record of researching funding opportunities and developing compelling, successful grant proposals** for nonprofit, healthcare, rare disease, medical research, or patient advocacy organizations. Through strategic prospect research and high-quality proposal development, this role will help strengthen the organization's institutional funding pipeline and clearly communicate its impact, priorities, and funding needs to prospective funders.

### **Responsibilities**

-   Research and identify relevant foundation, corporate, government, and institutional grant opportunities.
-   Develop and submit compelling grant proposals, letters of inquiry, applications, and supporting materials.
-   Collaborate with internal stakeholders to gather research, program, impact, financial, and organisational information needed for applications.
-   Maintain grant calendars and track deadlines, submissions, reporting requirements, and funding outcomes.
-   Support grant reporting, funder communications, and proposal revisions as needed.

## Requirements

-   Strong track record of developing successful grant proposals and securing institutional funding.
-   Significant grant writing and fundraising experience within nonprofit, healthcare, medical research, rare disease, patient advocacy, or related sectors.
-   Strong understanding of grant prospecting, funder research, proposal strategy, and institutional fundraising.
-   Strong grant research, proposal writing, storytelling, editing, and communication skills.
-   Highly organised and able to manage multiple applications and deadlines independently.

## Apply

[Apply at Digital](https://apply.workable.com/digital-368/j/2022D1627A/apply)

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